Wednesday, November 17, 2010

The Best of the Best

If you scroll below the picture of Lindsay on the left, you'll see the beginnings of a list. The Best of the Best is where we'll link to groups that help families facing childhood cancer.

My goal is to highlight groups that fund pediatric cancer research as well groups that provide support to families during and after treatment. Hopefully there will be some groups that you've never heard of. I felt that these smaller, volunteer driven groups were the ones who were the most helpful during Lindsay's treatment. There will also be some bigger groups, as I'm guessing corporations would prefer to donate their dollars to organizations with a reputation. Please know that there are groups with BIG reputations and yet seem to do very little for pediatric cancer (in terms of dollars to research and in actual support to families). If a group is "missing" from the list, there is probably a reason. That said, feel free to email me ideas of groups that I should highlight. I'm sure there are many good ones that I've never heard of!

The first organization I'm featuring is St. Baldrick's. If you know a kid with cancer, you have probably heard of St. Baldrick's. The St. Baldrick's foundation is a volunteer-driven charity committed to funding the most promising research to find cures for childhood cancer and give survivors long and health lives. St. Baldrick's provides more money for pediatric cancer research than any other organization except the federal government.

More importantly, read the list of grants they have funded! I am impressed by their focus on both rare and more common cancers as well as the late effects of cancer (organ failure, secondary cancers, etc). As a parent of a survivor we live in fear of both relapse, secondary cancer (resulting from treatment), and late effects of cancer. St. Baldrick's is committed to the kids during treatment AND after!

No comments:

Post a Comment